基于信息和通信技术的患者教育对自身免疫性炎症性类风湿性疾病:一个范围审查
Junghee Yoon1, Soo-Bin Lee2, Soo-Kyung Cho3
1Department of Clinical Research Design and Evaluation, SAIHST, Sungkyunkwan University, Seoul, South Korea; Institute for Quality of Life in Cancer, Samsung Medical Center, Seoul, South Korea.
Seminars in arthritis and rheumatism
|November 5, 2024
概括
基于信息和通信技术 (ICT) 的患者教育有望改善自身免疫性炎症性类风湿性疾病的自我管理. 像网站和聊天机器人这样的数字工具有效地提高了患者的坚持和行为改变.
科学领域:
- 类风湿病学 类风湿病学
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 自身免疫性炎症性类风湿性疾病需要有效的患者教育自我管理.
- 信息和通信技术 (ICT) 为患者教育提供了新的途径.
研究的目的:
- 对自身免疫性炎症性类风湿性疾病的现有基于ICT的患者教育进行映射.
- 确定有效性因素和专业人士的指导方针.
主要方法:
- 对PubMed,Cochrane,EMBASE和科学网络的范围审查 (2011年1月至2023年10月).
- 专注于类风湿性关节炎,结性脊髓炎和全身性红斑狼.
- 数据提取由两个独立审查员选.
主要成果:
- 在13861个记录中,有18个符合资格标准;大多数是来自美国的风湿性关节炎的RCT.
- ICT干预 (网络平台,聊天机器人) 改善了自我管理和药物坚持.
- 确定了ICT功能:数字自我管理,多媒体,个性化教育,游戏和在线社区.
结论:
- 基于ICT的患者教育具有改善自我管理的巨大潜力.
- 增强自身免疫性炎症性类风湿性疾病患者的行为变化.
- 需要为ICT干预提供理论框架和发展指南.
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