帮助孩子应对母亲的乳腺癌诊断:"告诉盒子" - 一项试点研究
Joyce M J de Vos-Houben1, Femke Bruls1, Christel Heiyerjans2
1Maastricht UMC+ Comprehensive Cancer Center, Maastricht, the Netherlands.
PEC innovation
|November 6, 2024
概括
"讲述盒"帮助母亲与孩子讨论癌症问题. 虽然有价值,但在护士培训和根据孩子的年龄和母亲的癌症阶段量身定制盒子内容方面需要改进.
科学领域:
- 儿科瘤学 儿科瘤学
- 儿童心理学 儿童心理学
- 患者沟通 患者沟通
背景情况:
- 与儿童讨论癌症是一项挑战.
- 透明的沟通有助于孩子在父母癌症期间应对.
- "讲述盒"的干预措施是为了支持这些对话中的母亲而创建的.
研究的目的:
- 探索瘤护士和母亲对"告知盒"干预的看法.
- 从用户的角度评估"告知框"的可用性和有效性.
主要方法:
- 进行了半结构面试.
- 参与者包括6名瘤护士和5名被诊断患有乳腺癌的母亲.
主要成果:
- 护士和母亲重视与孩子的开放沟通.
- 护士们发现"讲述盒"很有用,但面临着时间和知识等分配障碍.
- 母亲们报告说,盒子的设计和分娩的时间不是最佳的.
结论:
- "讲述盒"是与儿童讨论癌症的一个潜在的有价值的工具.
- 建议包括加强护士对其使用的教育,并根据孩子的年龄和母亲的癌症阶段定制内容.
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