生活在长期机械循环支持下的人群中的正常性:反思性的专题分析
Tiffany Dzou1,2, Huibrie C Pieters1,3
1Department of Psychiatry and Biobehavioral Sciences, University of California, Los Angeles, California, Los Angeles, USA.
Journal of advanced nursing
|November 6, 2024
概括
长期的机械循环支持 (MCS) 需要持续适应不断变化的正常感知. 患者面临心理社会挑战,需要量身定制的支持小组和临床医生的参与,以解决生活方式的变化和情感需求.
科学领域:
- 心脏病学 心脏病学
- 心理社会健康 心理健康
- 定性研究是指质量研究.
背景情况:
- 机械循环支持 (MCS) 装置用于晚期心力衰竭.
- 长期使用MCS会带来独特的心理社会挑战.
- 了解患者对正常状态的看法对于整体护理至关重要.
研究的目的:
- 探索长期使用机械循环支持生活的个体如何定义和体验正常.
- 确定与长期使用MCS相关的心理社会和家庭调整.
主要方法:
- 使用反射主题分析对定性数据的二次分析.
- 分析了12个故意采样的成绩单,这些成绩单来自于关于事先照顾计划的家长研究.
- 探索自然共享的正常生活经验.
主要成果:
- 出现了三个关键主题:默许,适应装置,以及重组家庭角色.
- 正常性不是静态的;它在植入后的几年里不断演变.
- 个人经常面临未解决的心理社会挑战,需要持续的适应.
结论:
- 在MCS患者中,对正常的感知是动态的,需要不断调整.
- 临床医生必须解决长期MCS患者复杂的情感,社会和家庭需求.
- 建议制定特定阶段的支持小组,以减轻社会退缩和增强性.
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