可读性的重要性:通过多语言在线资源了解脱发区的指南
Tomasz Skrzypczak1, Anna Skrzypczak2, Jacek C Szepietowski3
1University Hospital in Wroclaw, Wroclaw, Poland.
Acta dermato-venereologica
|November 7, 2024
概括
在线关于大发性脱发症及其治疗的信息很难理解. 患者教育材料,特别是关于Janus激酶抑制剂的材料,需要简化,以便更好地理解和明智地做出患者决策.
科学领域:
- 皮肤病学和患者教育
背景情况:
- 在线资源对于医疗条件的患者教育至关重要.
- 在线脱发区 (AA) 信息的可读性尚未得到广泛研究.
研究的目的:
- 评估在线AA相关材料在多种语言的可读性.
- 确定患者对AA及其治疗信息的理解方面的挑战.
主要方法:
- 分析了251篇英语,德语,法语,意大利语和西班牙语的在线文章,使用谷歌搜索"alopecia areata"和"alopecia areata治疗".
- 将文章分类为关于AA本身及其治疗的文章,治疗文章进一步分为Janus激酶 (JAK) 抑制剂和其他选项.
- 使用LIX分数评估可读性.
主要成果:
- 总体平均Lix分数为52±8,表明"非常难以理解"的材料.
- 处理文章 (平均Lix 55 ± 8) 比一般AA文章 (平均Lix 50 ± 8) 阅读明显困难.
- 关于JAK抑制剂的文章 (平均Lix 57 ± 10) 比其他治疗方法 (平均Lix 53 ± 6) 阅读要困难得多.
结论:
- 在线资源的白发病和其治疗提出了显著的可读性挑战.
- 对于患者来说,了解有关JAK抑制剂的信息特别复杂.
- 提高在线患者教育材料的清晰度对于明智的决策和有效的治疗关系至关重要.
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