收集农村和贫困人口患者报告的结果指标
Andrea Cheville1, Crystal L Patil2, Andrew D Boyd3
1Mayo Clinic Comprehensive Cancer Center, Rochester, Minnesota, United States.
Applied clinical informatics
|November 7, 2024
概括
从服务不足的人群中收集患者报告的结果措施 (PROM) 需要混合策略. 将数字工具与高触摸方法和短信相结合,可以提高响应率,以实现更大的健康公平.
科学领域:
- 临床试验 临床试验
- 健康差异 在健康上的差异
- 患者报告的结果
背景情况:
- 美国国家卫生研究院实证试验协作室 (NIH Pragmatic Trials Collaboratory) 涉及31项使用患者报告结果指标 (PROM) 的试验.
- 试验经常招募医疗服务不足的人群,包括低收入,少数民族和农村社区.
- 收集无偏见的PROM数据对于概括性和解决健康不平等至关重要.
研究的目的:
- 分享从服务不足的人群中收集PROM的经验教训.
- 突出差异倾向群体中数字PROM管理的挑战.
- 提高临床试验中PROM数据的完整性和代表性.
主要方法:
- 测试了各种策略来提高PROM反应率.
- 专注于差异倾向和服务不足的患者群体的方法.
- 在试验案例报告中描述了实施的策略和目标人群.
主要成果:
- 数字PROM管理 (EHR,Web接口) 在一些人群中显示出低参与度.
- 障碍包括较低的数字能力,有限的设备访问和减少EHR门户网站的采用.
- 优化PROM收集需要一个多方面的方法.
结论:
- 结合多种外展模式的混合方法至关重要.
- 高触摸方法和创造性的数字参与策略是关键.
- 多式联络参与者参与和短信改善了PROM在不同人群中的收集.
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