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集群头痛生活质量表 (CH-QoL) 的德语语言改编

Hannah Kuhn¹, Tara Petzke¹, Marie-Christin Schreiber¹

¹Department of Psychology, Johannes Gutenberg-University of Mainz, Wallstr. 3, 55099, Mainz, Germany.

|November 7, 2024

概括

开发并验证了集群头痛生活质量量量表 (CH-QoL) 的新德语版本. 该工具有效地评估德语地区集群头痛患者的疾病特异性生活质量.

科学领域:

神经学神经学
心理测量心理测量心理测量
生活质量研究研究生命质量研究

背景情况:

集群头痛 (CH) 显著影响残疾和生活质量 (QoL).
评估疾病特异性QoL对于临床实践和CH的研究至关重要.
28项集群头痛生活质量尺度 (CH-QoL) 是用于QoL评估的验证工具,但没有德国版本.

研究的目的:

开发CH-QoL的德语版本.
为了评估德国CH-QoL的心理测量特性.
提供可靠的工具来评估德语系CH患者的QoL.

主要方法:

该CH-QoL经过专家翻译和逆向翻译,随后对CH患者进行了可理解性测试.
通过专家小组讨论,进行了语言修改.
一项对106名CH患者进行的横截面在线调查评估了德国CH-QoL与其他尺度 (例如集群头痛尺度) 一起评估.

主要成果:

探索性因素分析确定了两个因素:"限制日常生活活动"和"对情绪和人际关系的影响",与最初的四个因素不同.
该模型显示出很好的合适性 (RMSEA=0.088,SRMR=0.053,TLI=0.857).
观察到高可靠性 (麦当劳的欧米茄 ω=0.97) 和确认的收有效性.

结论:

德国版本的CH-QoL表现出极好的心理测量特性.
它是一个适合在德语国家评估集群头痛患者的疾病特异性 QoL 的工具.
这种经过验证的工具将有助于这群人群中CH患者的临床护理和研究.

关键词:

集群头痛集群头痛是指集群头痛.患者报告的结果衡量措施.生活质量生活的质量.问卷调查问卷问卷调查问卷三胞胎自主脑膜疼痛三胞胎自主脑膜疼痛

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