评估基于网络的"平衡合作伙伴"计划,用于亨廷顿病患者的非正式照顾者:试点研究
Maud M J Daemen1, Lizzy M M Boots1, Mayke Oosterloo2
1Department of Psychiatry and Neuropsychology / Alzheimer Center Limburg, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, the Netherlands.
Internet interventions
|November 8, 2024
概括
在线"平衡伙伴" (PiB) 计划是亨廷顿病 (HD) 护理人员可行的和可接受的自我管理工具,显示出降低压力和焦虑的潜力.
科学领域:
- 神经退行性疾病 神经退行性疾病
- 护理人员支持护理人员支持
- 数字健康干预措施 数字健康干预措施
背景情况:
- 亨廷顿病 (HD) 显著影响个人及其非正式照顾者.
- 照顾者往往因为HD护理的要求而忽视自己的福祉.
- "平衡合作伙伴" (PiB) 计划是一个为期8周的在线辅导干预计划,专为HD护理人员设计.
研究的目的:
- 评估PiB-HD程序的可行性,可用性和可接受性.
- 评估PiB-HD计划对护理人员幸福感的初步影响.
- 收集护理人员和教练关于该项目的实用性的见解.
主要方法:
- 使用前后设计的试点研究.
- 定量和定性措施评估了护理人员感知的可行性.
- 自我报告措施评估了对自我效能,掌握能力,情绪,生活质量和功能的初步影响.
主要成果:
- 18名护理人员完成了干预,报告了积极的可用性,相关性和可接受性.
- 参与者发现该计划有助于应对挑战并培养应对技巧.
- 描述性统计表明压力和焦虑减轻的潜力;教练报告了积极的程序属性.
结论:
- 对于亨廷顿病患者的照顾者来说,PiB-HD计划是可行的,可用的和可接受的.
- 这些发现支持进一步研究PiB-HD干预措施的有效性.
- 结果可以为eHealth解决方案在亨廷顿氏病护理提供中的部署提供信息.
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