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在接受息治疗的青少年手术干预的目标
Danielle I Ellis1,2, Li Chen3, Samara Gordon Wexler4
1Department of Surgery, Massachusetts General Hospital, Harvard Medical School, Boston.
JAMA network open
|November 8, 2024
概括
在息治疗中,几乎所有的年轻人都接受了手术干预,通常是为了改善生命或诊断. 了解这些程序的目标是提供符合目标的护理的关键.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 手术干预 手术干预
- 护理的目标 护理的目标
背景情况:
- 大多数接受息治疗的年轻人一生都会接受多次手术干预.
- 这些手术干预的具体目标和目的,与患者的整体护理目标相比,往往没有明确表达.
研究的目的:
- 描述接受息治疗的年轻人手术干预的目标和目的.
- 提出一个框架,使用面向目标的语言讨论手术干预.
主要方法:
- 从小儿息治疗研究网络的共享数据和研究 (SHARE) 研究中对一小部分患者进行了回顾性队列分析.
- 分析了2017年4月至2021年3月期间在波士顿儿童医院/达纳·法伯癌症研究所接受息治疗的30岁以下患者的数据.
- 所有手术干预的目标和目的从患者记录中抽象出来,并使用混合演-诱导方法生成目标和目的框架.
主要成果:
- 在197名参与的年轻人中,几乎所有 (95.9%) 的年轻人至少接受过一次手术,平均每位患者接受了17.5次手术.
- 手术干预被分类为:延长生命的26.5%,增长生命的37.1%,两者的2.4%,没有目标的34.1%.
- 最常见的目的是诊断 (32.9%) 和治疗/修复 (31.8%),其次是辅助技术 (21.0%),支持性 (13.1%) 和定时 (1.2%).
结论:
- 该研究强调,手术干预的目的根据儿科息护理患者的严重疾病类型有很大差异.
- 实施讨论手术干预的目标和目的的框架可以帮助提供与患者和家庭目标一致的护理.
- 这种方法有可能提高患有严重疾病的青少年的护理质量.
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