数字健康技术支持以患者为中心的共享决策,在青少年异常性关节炎的护理点
Bin Huang1,2, Michal Kouril2,3, Chen Chen1
1Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.
Frontiers in pediatrics
|November 11, 2024
概括
新的数字工具可以帮助个性化青少年异常性关节炎 (JIA) 治疗. 通过分析现实世界的数据,这些技术支持医生和家庭之间的共享决策,以获得儿童类风湿性疾病的更好的结果.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 数字健康数字健康
- 医疗信息学 医疗信息学
背景情况:
- 青少年异常性关节炎 (JIA) 影响1:1000名儿童,尽管有治疗方法,但引起疼痛和残疾.
- 目前的JIA治疗选择依赖于临床试验或保险限制的平均患者数据,而不是个体患者的需求.
- 现有的治疗模式缺乏个性化,并且不考虑JIA中的异质治疗效应.
研究的目的:
- 为个性化JIA治疗决策引入一种新的数字健康技术概念.
- 通过将以患者为中心,现实世界的证据整合到临床实践中,使共享决策成为可能.
- 利用电子健康记录数据进行比较有效性分析,以实现个性化护理.
主要方法:
- 使用数字健康技术捕获和分析电子健康记录或观察性登记数据.
- 对具有相似特征的患者的数据进行比较有效性分析.
- 开发一种工具,以提供个性化,以患者为中心的信息,以便共享决策.
主要成果:
- 拟议的数字工具旨在组织和呈现有关JIA患者的相关数据.
- 它在协作环境中促进基于证据的,个性化的治疗决策.
- 这种方法与在护理点学习健康系统的原则保持一致.
结论:
- 数字健康技术为优化JIA治疗选择提供了一个有希望的途径.
- 基于现实世界的证据的个性化治疗决定可以改善JIA儿童的结果.
- 将以患者为中心的数据整合到风湿病学实践中,可以增强协作决策过程.
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