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一个单盲,随机对照试验,针对帕金森病患者的家庭护理人员结构化多组件培训模块的有效性:一项研究协议

Nur Izyan Mohd Amin¹, Nor Azlin Mohd Nordin¹, Aniza Ismail²

¹Center for Rehabilitation and Special Needs Studies, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.

|November 11, 2024

概括

本研究评估了马来西亚帕金森病 (PD) 家庭护理人员的结构化培训计划. 该计划旨在提高护理人员的知识和技能,潜在地减少负担并增强患者护理.

科学领域:

神经学神经学
老年学是指老年学的学科.
健康科学卫生科学卫生科学

背景情况:

帕金森病 (PD) 患病率在全球上升,预计到2040年在马来西亚增加五倍.
马来西亚目前的PD护理缺乏结构化,全面的家庭护理人员培训计划.
评估护理人员干预措施的可行性,有效性和可持续性对于高质量的PD管理至关重要.

研究的目的:

对帕金森病 (PD) 患者的家庭护理人员进行结构化,全面的培训计划的有效性进行评估,与通常的护理相比.
在马来西亚背景下评估护理人员培训计划的可行性,可持续性和成本效益.
解决有关PD护理人员培训计划的文献中发现的空白,特别是在不同的文化环境中.

主要方法:

一项为期12周的随机对照试验,涉及60名患有PD (II-III阶段) 的患者及其主要家庭护理人员.
实验组接受多学科培训和家庭物理模块;对照组接受通常的护理.
测量结果包括身体功能 (MDS-UPDRS,TUG),生活质量 (PDQ-39,EQ-5D),照顾者负担 (MZBI) 和知识 (KPDQ),使用混合模型ANOVA进行分析.

主要成果:

这个部分不在所提供的摘要中.
进一步分析将确定培训对护理人员负担和患者结果的影响.
成本效益将使用平均和增量成本效益比率来评估.

结论:

全球和马来西亚对帕金森病 (PD) 的家庭护理人员综合培训计划存在重大差距.
本研究方案解决了在马来西亚环境下对此类计划可行性,有效性和成本效益的证据需求.
该培训计划有可能提高护理人员的信心和技能,积极影响家庭环境中的PD护理.

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