在过渡期护理期间,EULAR指出需要考虑患者在体育活动和疼痛自我管理方面的教育
Javier Courel-Ibáñez1, Rafael Prieto-Moreno2,3, Erica Briones-Vozmediano4,5
1Department of Physical Education and Sports, University of Granada, Granada, Spain.
Annals of the rheumatic diseases
|November 12, 2024
概括
这项研究开发了欧洲反风湿联盟 (EULAR) 在过渡期护理期间对患有风湿性疾病的年轻人进行体力活动和疼痛自我管理的患者教育要考虑的要点.
科学领域:
- 类风湿病学 类风湿病学
- 儿科风湿病学 儿科风湿病学
- 过渡期护理是指过渡期护理.
背景情况:
- 青少年发病的风湿和肌肉骨疾病 (RMDs) 需要专门的过渡期护理.
- 有效的患者教育对于在这种过渡期间管理身体活动和疼痛至关重要.
- 目前关于该领域患者教育的指导方针有限.
研究的目的:
- 为患者教育制定欧洲反风湿联盟 (EULAR) 需要考虑的要点 (PtC).
- 专注于身体活动和自我疼痛管理在青少年发病RMD的年轻人.
- 指导从儿科到成人服务的过渡性护理.
主要方法:
- 召开了一个由来自10个欧洲国家的26名专家组成的EULAR工作组.
- 方法包括文献审查和专家共识,遵循EULAR标准化操作程序.
- 建立了总体原则 (OAP) 和PtC,确定了证据水平 (LoE),建议级 (GoR) 和协议水平 (LoA).
主要成果:
- 制定了两个OAP和七个PtC,强调个性化,共享决策和交互式教育.
- PtC的目标是赋予年轻人身体活动和疼痛的管理能力.
- 根据LoE 2b/5分配了中度到弱度的推 (GoR B/D),同意程度高 (LoA 8.79.8).
结论:
- 在EULAR PtC提供了有关在类风湿病过渡期护理期间对体力活动和疼痛自我管理的患者教育最佳实践的指导.
- 建议采用这些PtC来标准化和优化欧洲医疗保健系统的过渡期护理.
- 这些PtC预计将推动未来的研究,并影响欧洲的政策制定.
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