患有永久性骨髓损伤的生活:对结直肠癌患者的术后经历进行描述性的现象学研究
Zuo Tan1, Lili Jiang2, Anqing Lu3
1Colorectal Cancer Center, West China Hospital, Sichuan University, Chengdu, Sichuan, China tan.zuo.168@163.com.
结肠直肠癌幸存者面临着重大的生活调整和挑战,需要全面的支持和教育,以改善术后适应和生活质量.
科学领域:
- 在瘤学瘤学.
- 质量健康研究 质量健康研究
- 患者体验 患者体验
背景情况:
- 结肠直肠癌 (CRC) 幸存者经历了永久性骨切除术,经历了深刻的生活变化.
- 了解这些生活经验对于提高患者护理和指导未来研究至关重要.
研究的目的:
- 为了探索患有结直肠癌 (CRC) 和永久性骨干的患者的术后生活经验.
- 为旨在改善患者护理和指导未来定量研究的倡议提供信息.
主要方法:
- 进行了一项描述性的定性现象学研究.
- 12名患有CRC和永久性骨干的患者参加了深入采访.
- 这项研究是在一所主要大学癌症中心的结肠直肠癌部门进行的.
主要成果:
- 参与者描述了向"新常态"的过渡,包括广泛的日常生活调整,心理适应和口腔护理挑战.
- 关键主题包括重塑日常生活,改变生活质量观念,重新定义身体形象和个人身份.
- 人们普遍强调对专业指导和社会支持的强烈需要.
结论:
- 患有CRC和永久性口腔切除的患者经历了复杂的适应过程,重建了他们的身体,心理和社会福祉.
- 确定的信息和支持需求表明当前的患者教育和沟通策略中存在潜在的差距.
- 为医疗保健专业人员和决策者推以患者为中心的方法,包括开放的沟通,定制的教育和社区支持.
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