一个针对初级渐进性失言症 (COS-PPA) 的国际核心成果集:在研究和临床环境中进行沟通干预的基于共识的建议
Anna Volkmer1, Emily Viega Alves2, Hagit Bar-Zeev3
1Division of Psychology and Language Sciences, University College London, London, UK.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|November 13, 2024
概括
研究人员确定了原发性渐进性失言症 (PPA) 患者的关键沟通结果,不仅仅是单词准确性. 需要进一步开发测量工具,以捕捉PPA护理的这些重要方面.
科学领域:
- 神经学 神经学
- 语音语言病理学 语言病理学
- 临床研究 临床研究
背景情况:
- 目前针对初级渐进性失言症 (PPA) 的干预措施通常依赖于单词准确性作为主要结果衡量标准.
- 这种重点忽略了对PPA患者及其护理伙伴而言重要的其他关键沟通方面.
研究的目的:
- 确定和定义PPA患者及其护理伙伴的核心结果结构.
- 建立关于PPA研究和临床实践中重要结果的共识.
主要方法:
- 对84种结果测量工具进行系统审查.
- 达成共识的小组包括82名PPA患者和91名护理合作伙伴.
- 根据核心成果制定发展建议标准 (COSSTAD) 的57名研究人员的e-Delphi共识.
主要成果:
- 确定了五个核心结果结构:对话参与,单词检索,流利性,消息传递和消息理解.
- 研究人员无法就这些结构的特定测量仪器达成共识.
- 针对PPA变种,引入了新的症状主导的视角,包括分阶段计划和功能障碍尺度 (PPA进展规划援助).
结论:
- 现有的测量仪器不足以捕捉PPA患者的所有关键结果.
- 需要进一步的研究来开发和验证新的测量工具,这些工具与已识别的核心结果结构保持一致.
- 建议采用一种更广泛的,以症状为导向的方法来评估和管理PPA.
相关概念视频
Guidelines for Writing Outcome
2.7K
When developing expected outcomes for a patient care plan, the nurse should adhere to the following recommendations:
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...
2.7K
Role of Communication in the Nursing Process II: Planning and Implementation
1.8K
Several factors are considered while creating a patient's care plan. Motivation is a factor in improving communication, and patients often require encouragement to try different approaches involving significant change. It is essential to involve the patient and family in decisions about the plan of care to determine whether the suggested methods are acceptable. Consider meeting critical comfort and safety needs before introducing new communication methods and techniques. Allow adequate time...
1.8K
Autism Spectrum Disorder
67
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
67
Therapeutic Communication
4.4K
Communication is a lifelong learning process. Through therapeutic communication, nurses can collect relevant assessment data, provide education and counseling, and interact during nursing interventions. Sending and receiving messages occur through verbal and nonverbal communication techniques and can happen separately or simultaneously.
Verbal communication depends on language or a prescribed way of using words so that people can share information effectively. The critical aspects of verbal...
Verbal communication depends on language or a prescribed way of using words so that people can share information effectively. The critical aspects of verbal...
4.4K
Techniques of Therapeutic Communication II: Focusing, Paraphrasing, and Summarizing
7.8K
Focusing involves centering a conversation on a message's critical elements or concepts. Focusing is valuable if the talk is vague or patients begin to repeat themselves. Sometimes, when patients are asked about their symptoms, they may go off-topic and try to tell their entire life story. Respectfully, the nurse should bring the conversation back into focus.
This therapeutic technique can also be used when a patient brings up pertinent information during a health-related conversation. The...
This therapeutic technique can also be used when a patient brings up pertinent information during a health-related conversation. The...
7.8K
Barriers to Effective Communication II
3.6K
The barriers to effective communication also include cultural barriers, semantic barriers, gender barriers, and time constraints.
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
3.6K


