参与者对克罗恩病患者多模式压力管理和全面生活方式修改计划的看法 - - 一项定性访谈研究
Christoph Schlee1,2,3, Christine Uecker1,2, Özlem Öznur1,2
1Department of Internal and Integrative Medicine, Sozialstiftung Bamberg, Bamberg, Germany.
一个为期10周的生活方式修改计划改善了克罗恩病 (CD) 患者的生活质量. 这种补充疗法增强了自我效能和症状管理,为日常疾病管理提供了宝贵的支持.
科学领域:
- 胃肠病学 胃肠病学
- 心理学 心理学 心理学
- 公共卫生 公共卫生
背景情况:
- 克罗恩病 (CD) 是一种普遍存在的炎症性肠病 (IBD),显著降低了患者的生活质量.
- 多模式疗法,包括正念和减轻压力,对IBD有希望,但需要在CD中进行进一步的研究.
- 对克罗恩病的全面生活方式修改计划的研究是有限的.
研究的目的:
- 研究一项为期10周的日间诊所生活方式修改计划对克罗恩病患者的健康和生活质量的影响.
- 探索患者对干预所感知的变化和融入日常生活的观点.
- 评估多式疗法作为克罗恩病管理的补充方法的有效性.
主要方法:
- 在随机对照试验中进行的定性访谈研究.
- 干预后三个月进行的电话采访 (n=19).
- 使用MAXQDA软件进行的反射性主题分析.
主要成果:
- 克罗恩病具有多方面的影响 (心理,身体,社会),减少生活质量.
- 患者寻求自我帮助的选择,以补充药物治疗和积极管理他们的状况.
- 报告的满意度很高;患者整合了计划要素,注意到有显著的改善,特别是在自我效能和症状管理方面.
结论:
- 多式减轻压力和改变生活方式的日间诊所是克罗恩病的有益补充疗法.
- 该计划使患者能够管理个体症状,增强疾病理解,改善生活质量.
- 需要进一步的研究来评估这种干预的长期影响.
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