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[欧洲罕见病参考网络]

Tanja Wlodkowski1, Stefanie Haeberle2, Franz Schaefer2

  • 1Zentrum für Kinder und Jugendmedizin, Sektion Pädiatrische Nephrologie, Universitätsklinikum Heidelberg, Im Neuenheimer Feld 430, 69120, Heidelberg, Deutschland. tanja.wlodkowski@med.uni-heidelberg.de.

Innere Medizin (Heidelberg, Germany)
|November 13, 2024
PubMed
概括

欧洲罕见病参考网络 (ERKNet) 汇集了95个中心,以加强对200万患有罕见病的欧洲人的护理. 它提供在线咨询,指导方针,培训和注册,以标准化和改善欧洲的治疗.

关键词:
患者信息 患者信息研究生课程研究生课程.实践建议 实践建议罕见疾病是一种罕见的疾病.虚拟咨询 虚拟咨询

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