在患有晚期癌症的儿童及其父母身上寻找好处
Emma Siefring1,2, Anna L Olsavsky2, Megan Schaefer3,4,5
1Department of Psychology, The Ohio State University, Columbus, OH, USA.
Palliative & supportive care
|November 14, 2024
概括
患有晚期癌症儿童的家庭报告发现了显著的好处,孩子们独立地经历了这一点. 这表明,即使面对危及生命的疾病,弹性和积极的结果也是可能的.
科学领域:
- 儿科瘤学 儿科瘤学
- 儿童心理学 儿童心理学
- 家庭研究 家庭研究
背景情况:
- 儿科癌症会给家庭带来很大的压力,但大多数幸存者表现出性.
- 一些幸存者报告发现好处 (积极的结果),但对患有晚期癌症儿童的家庭知之甚少.
- 这项研究侧重于在面临限制生命的儿童癌症的家庭中寻找好处.
研究的目的:
- 调查晚期癌症儿童及其父母的益处发现.
- 探索与这些家庭的福利寻找相关的人口和医疗因素.
- 了解儿童和父母关于积极结果的独特经验.
主要方法:
- 招募了72个患有晚期癌症的儿童 (5-25岁) 的家庭.
- 晚期癌症定义为复发/耐药,预后<60%,或终身护理转诊.
- 参与者完成了人口调查和福利发现量表.
主要成果:
- 儿童,母亲和父亲报告中等至高的获益发现分数.
- 家庭成员之间获得福利的相关性很弱,不显著.
- 儿童报告发现的益处高于父亲;没有人口统计学/医疗因素相关.
结论:
- 患有晚期癌症的儿童的家庭表现出中度至高的获益.
- 孩子们的利益寻找似乎独立于父母的经验.
- 需要进一步的研究来为儿童癌症的积极和消极结果提供干预信息.
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