通过系统性硬化症患者的数字平台进行同行指导计划:可行性研究
Yen T Chen1,2,3, Nirali Shah1,3, Mary Alore3
1Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.
Journal of scleroderma and related disorders
|November 15, 2024
概括
对于患有系统性硬化症 (SSc) 的人来说,数字同行指导是可行的和可以接受的. 该计划显著降低了门徒的焦虑,显示了对SSc患者福祉的潜在益处.
科学领域:
- 类风湿病学 类风湿病学
- 数字健康数字健康
- 患者支持 患者支持
背景情况:
- 系统性硬化症 (SSc) 带来了重大的身体和情绪挑战.
- 同行指导通过利用共同经验提供了一个有希望的支持途径.
- 数字平台可以促进可扩展的同行支持.
研究的目的:
- 评估一个为期16周的数字同行指导计划的可行性,用于SSc.个人.
- 评估这种同行指导干预对SSc患者的潜在健康影响.
- 确定数字平台对同行指导的可接受性和可用性.
主要方法:
- 用一组研究设计来评估16周的计划.
- 导师和受教者根据SSc特征和人口统计数据进行了匹配.
- 使用既定标准评估可行性,同时在多个时间点测量健康结果和平台可用性.
主要成果:
- 数字同行指导计划被发现是可行的,可接受的,对于导师和受教者来说都是用户友好的.
- 参与者报告说,干预后的焦虑水平在统计学上显著降低 (p < 0.001).
- 在疲劳,疼痛干扰,抑郁情绪和弹性方面注意到改善的趋势,尽管在统计学上并不显著.
结论:
- 数字同行指导是系统性硬化症患者的受欢迎和可行的干预措施.
- 初步发现表明潜在的健康益处,特别是减轻焦虑,支持其用于提高SSc患者福祉.
- 这项研究为未来研究SSc的数字同行指导干预提供了基础.
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