改善组织以改善护理:ERN ReCONNET是系统性硬化症患者护理途径的组织参考模型
Rosaria Talarico1, Diana Marinello1, Ilaria Palla2
1Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
Journal of scleroderma and related disorders
|November 15, 2024
概括
RarERN Path©方法提供了一个灵活的模式来组织系统性硬化症护理. 这种方法确保了不同国家的更好的临床实践和患者途径.
科学领域:
- 风湿病学和免疫学
- 医疗保健管理的管理
- 患者护理协调与协调
背景情况:
- 欧洲罕见和先天性疾病参考网络 (ERN ReCONNET) 开发了RarERN Path©方法,以优化护理提供.
- 系统性硬化症 (SSc) 管理需要协调,多学科的护理途径.
研究的目的:
- 将RarERN Path©方法应用于ERN ReCONNET中心内的全身性硬化症护理.
- 建立一个灵活,可行的组织参考模型,以优化国际上SSc护理途径.
主要方法:
- RarERN Path©方法包括一个六个阶段的过程.
- 它包括绘制现有患者旅程的地图,与利益相关者共同设计共同途径,并定义关键绩效指标.
主要成果:
- 开发的模型强调了简化推流程,以便患者直接进入专门单位.
- 主要推的服务包括专业咨询 (心脏病学,肺病学等). ),输液治疗,伤口护理,职业治疗和物理治疗.
结论:
- 该组织模式支持在临床实践中实施基于证据的系统性硬化症管理建议.
- 这一框架促进了专业服务的整合,以提供全面的SSc患者护理.
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