为所有人进行研究:为我们所有人研究计划建立一个多元化的研究人员社区
Rubin Baskir1, Minnkyong Lee1, Sydney J McMaster1
1All of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Journal of the American Medical Informatics Association : JAMIA
|November 15, 2024
概括
美国国家卫生研究院 (NIH) 的"我们所有人"研究计划 (All of Us) 通过培养包容性参与生态系统,成功建立了多元化的研究人员社区. 这个倡议增加了数据的使用,解决了生物医学研究中的不平等问题,促进了健康公平.
科学领域:
- 生物医学研究的研究.
- 卫生公平性健康公平性
- 数据科学是数据科学.
背景情况:
- 美国国家卫生研究院 (NIH) 的"我们所有人"研究计划 (All of Us) 旨在吸引多元化的研究人员社区.
- 采用强大的参与生态系统模型来吸引和支持研究人员.
- 该计划旨在增加我们所有人的数据集的使用.
研究的目的:
- 描述建立多元化和包容性研究人员参与生态系统的策略.
- 介绍我们所有人计划中研究人员使用量的增长指标.
- 分析研究人员和机构使用我们所有人的研究人员工作台的趋势.
主要方法:
- 定义研究人员受众和多样性类别以指导战略.
- 与项目合作伙伴共同制定了研究人员参与战略.
- 使用了适应的生态模型来支持我们所有人的数据使用.
- 分析了来自我们所有研究人员工作台人口调查的统计数据.
主要成果:
- 在2022年至2024年期间,13个合作组织支持研究人员推广和数据使用.
- 工作台的注册和使用量有所增加,包括代表性不足的研究人员.
- 少数民族服务机构的数据使用和注册协议也增加了.
结论:
- 我们所有人通过有意的参与和伙伴关系建立了多样化,包容性和不断增长的研究社区.
- 该计划解决了系统性数据访问问题和生物医学研究中的结构性不平等.
- 未来的倡议将重点是进一步支持研究人员和机构克服数据使用挑战并推进健康公平.
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