"在线边界工作":糖尿病患者如何在Facebook同行支持小组中谈判什么是合法的知识
Emilie Mølholm Kjærulff1, Mette Andersen Nexø2, Chrysanthi Papoutsi3
1Dept. of Education, Copenhagen University Hospital - Steno Diabetes Center Copenhagen, Herlev, Denmark; University of Copenhagen, Institute of Public Health, Section for Health Services Research, Denmark.
糖尿病患者使用在线小组分享经验和建议,共同确定哪些知识是值得信赖的. 这种"在线边界工作"有助于他们导航自我管理,即使没有达到完全的共识.
科学领域:
- 社交媒体在健康中的作用
- 科学和技术研究 (STS)
- 患者主导的知识谈判谈判
背景情况:
- 糖尿病等慢性疾病需要同伴的支持.
- 社交媒体平台促进了糖尿病患者之间的互动.
- 人们对网上分享的健康错误信息存在担忧.
研究的目的:
- 探索糖尿病患者如何在在线Facebook群组中谈判合法知识.
- 分析在同行支持中"在线边界工作"的过程.
主要方法:
- 六个月的观察两个丹麦的Facebook群组,针对1型和2型糖尿病患者.
- 从2021年开始对300条帖子和7797条评论进行分析.
- 边界工作概念的应用 (Gieryn,1983).
主要成果:
- 会员们认识到个人经验是有价值的,但并不总是作为最终的建议.
- 同行支持有助于评估医疗问题,专业人士通常保留最终决策权.
- 科学或专业来源被调动来验证或质疑共享的信息,而不一定达成共识.
结论:
- 社交媒体使集体解决问题和反思慢性疾病的自我管理成为可能.
- 在线边界工作是一个持续的努力,在同行支持小组内建立可信的知识.
- 这种谈判过程促进了团结,并为日常自我管理提供了有用的知识,尽管共识和临床准确性并未得到保证.
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