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临床医生获得研究和治疗知情同意的经验:巴基斯坦的一项嵌套定性研究
Rakhshi Memon1, Muqaddas Asif2,3, Bushra Ali Shah2
1University College London, London, UK. r.memon@ucl.ac.uk.
BMC medical ethics
|November 16, 2024
概括
在巴基斯坦,在临床研究和治疗的知情同意过程中,家庭参与和共同决策往往优先于个人自主权. 临床医生导航文化价值观,在平衡患者利益方面面临挑战.
科学领域:
- 医学伦理 医学伦理
- 临床研究 临床研究
- 在医疗保健中的文化研究.
背景情况:
- 知情同意尊重参与者通过信息,能力和不受胁迫的自由来实现自主权.
- 在理解自治方面存在文化差异,特别是个人主义和集体主义价值观之间的紧张关系.
- 本研究研究了巴基斯坦临床医生的知情同意经验,重点关注随机对照试验 (RCT) 和一般医疗保健.
研究的目的:
- 在巴基斯坦,探索临床医生在知情同意的经验.
- 调查在医疗保健和研究环境中获得知情同意的挑战.
- 在同意过程中了解自治与集体主义价值观的文化细微差别.
主要方法:
- 在巴基斯坦对20名临床医生进行了定性采访.
- 临床医生参与招募参与者参加自杀预防RCT.
- 采访采用了半结构化的主题指南,录制了音频,并逐字转录.
主要成果:
- 共享决策和家庭参与优先于个人自主权.
- 家庭族长的决定往往占据着突出地位,影响了同意过程.
- 临床医生在招募RCT和日常护理期间获得同意时面临重大挑战,包括性别差异.
结论:
- 文化差异对知情同意的理解和实践产生重大影响.
- 在巴基斯坦,重点从个人自治转向以家庭为中心的决策.
- 临床医生-研究人员调整他们的方法,平衡患者的利益与文化规范.
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