探索诊断的极限:年轻成年人的慢性生活经验
Imogen Harper1, Katherine Kenny1, Alex Broom1
1Sydney Centre for Healthy Societies, School of Social and Political Sciences, Faculty of Arts and Social Sciences, University of Sydney, Sydney, New South Wales, Australia.
患有慢性疾病的年轻人通常会随着时间的推移去中心化他们的诊断. 导航诊断的局限性显著影响情绪健康,这是一个关键的方面,经常被误解在慢性疾病的经验.
科学领域:
- 健康和疾病的社会学
- 质量健康研究 质量健康研究
- 慢性病的心理学 慢性病的心理学
背景情况:
- 患有慢性疾病的年轻人面临着相当大的不确定性.
- 生物医学诊断往往是管理慢性疾病的核心.
- 诊断的意义和实用性可以随着时间的推移而改变.
研究的目的:
- 探索诊断对患有慢性疾病的年轻成年人的作用和意义.
- 了解年轻人如何在他们的生活中去中心诊断.
- 要突出涉及到导航诊断缺陷的情感劳动.
主要方法:
- 有关深入采访的定性研究.
- 33名年轻成年人 (年龄19-29岁) 与各种慢性疾病参与.
- 使用构造主义立足理论的诱导性解释性分析.
主要成果:
- 参与者在各种生活环境中反复地去中心化了他们的诊断.
- 诊断的最初承诺往往会随着时间的推移而恶化.
- 管理诊断的局限性需要大量的情感工作.
结论:
- 对患有慢性疾病的年轻人来说,诊断并不总是稳定的稳定来源.
- 导航诊断缺陷的情感损失是相当大的.
- 误解这种情感工作会导致误解年轻人的慢性疾病经验.
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