关于电子健康的公民权利和承诺宪章提案的制定和验证
Fernando Campaña-Castillo1, Olga Paloma-Castro2, José Manuel Romero-Sánchez2
1Facultat de Medicina i Ciències de la Salut, Departament d'Infermeria Fonamental i Clínica, Universidad de Barcelona, Barcelona, Spain; Hospital Sant Rafael de Barcelona HHSCJ, Barcelona, Spain.
Enfermeria clinica (English Edition)
|November 16, 2024
概括
制定和验证了一份新宪章,概述了电子健康 (eHealth) 患者的权利和承诺. 这个必不可少的工具解决了在医疗保健互动中日益使用技术的问题.
科学领域:
- 数字健康数字健康
- 医疗保健创新 医疗保健创新
- 患者权利 患者权利
背景情况:
- COVID-19大流行加速了医疗保健领域的技术采用,创造了新的挑战和机会.
- 虽然存在一般患者权利宪章,但电子卫生缺乏具体的框架.
- 适应技术进步对于公民,医疗保健专业人员和组织至关重要.
研究的目的:
- 创建和验证公民对电子健康的最低一组权利和承诺.
- 建立一个电子健康互动的基础文件.
主要方法:
- 专家们制定了一份20项宪章 (10项权利,10项承诺).
- 基于互联网的两轮Delphi方法涉及134名参与者 (专家,患者,专业人士) 用于验证.
- 使用内容有效性指数和kappa统计数据评估了内容有效性和评审者之间的可靠性.
主要成果:
- 最初,18项项目符合验证标准;两个承诺需要修改.
- 经过修订后,所有20个项目在第二轮中都取得了可接受的内容有效性和可靠性.
- 最终完成的宪章证明了充分的内容有效性和观察者之间的可靠性.
结论:
- 成功制定了一份关于电子健康患者权利和承诺宪章的验证提案.
- 该宪章为讨论技术在患者与医疗服务提供者的互动中所扮演的角色提供了一个起点.
- 这一框架对于在不断变化的数字医疗保健领域进行导航至关重要.
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