超越队列:探索乳腺癌患者故事中的等待实践
Nada Akrouh1, Rik Wehrens1, Erna Scholtes1
1Department of Health Care Governance, Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.
患有乳腺癌的患者以独特的方式经历等待,感觉时间变厚,受到疾病污染或积极导航. 了解这些患者等待体验对于改善医疗保健质量至关重要.
科学领域:
- 改善医疗保健质量 改善医疗保健质量
- 患者体验研究 研究研究
- 质量健康研究 质量健康研究
背景情况:
- 等待是医疗保健的一个重要但经常被忽视的方面,影响患者的福祉.
- 患者等待的经验隐藏在等待列表和时间的更广泛讨论中.
- 了解患者等待体验是改善医疗保健实践的关键.
研究的目的:
- 探索患有乳腺癌的女性等待的经历.
- 揭示医疗机构患者等待的多面性质.
- 确定等待如何影响患者的情感和实际生活.
主要方法:
- 对12个患有乳腺癌的妇女的患者书籍进行主题分析.
- 吸收式分析专注于等待的主题.
- 利用公民科学倡议进行数据收集.
主要成果:
- 确定了等待的三个核心主题:时间加厚,受污染的时间和导航时间.
- 时间加厚:患者经历时间减慢,具有显著的情绪影响.
- 受到污染的时间:等待是疾病的一个持续方面;导航时间:患者采用策略来管理等待.
结论:
- 患者等待经验揭示了等待的负担,受医疗保健组织和疾病感知的影响.
- 了解这些经验为改善医疗保健质量提供了洞察力.
- 患者叙述强调需要以患者为中心的方法来管理等待期.
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