父母与技术依赖的孩子生活的经验:一个现象学研究
Sara Raquel Machado Lemos1,2, Luísa Maria Costa Andrade3,4, Lígia Maria Monteiro Lima3,4
1University of Porto, Porto, Portugal.
Global qualitative nursing research
|November 18, 2024
概括
照顾技术依赖的孩子会深刻地重塑家庭生活,需要大量的适应和支持. 这项研究探讨了父母的生活经验,强调了挑战和医疗保健专业人员在改善干预措施中的关键作用.
科学领域:
- 护理 护理 护理
- 家庭健康 家庭健康
- 儿科护理 儿科护理
背景情况:
- 技术依赖的孩子需要广泛的家庭照顾.
- 对葡萄牙家庭的影响仍未得到充分研究.
- 了解父母的经历对于有效的护理干预至关重要.
研究的目的:
- 描述葡萄牙照顾技术依赖儿童的父母生活经验.
- 识别影响家庭动态的挑战和支持系统.
- 为护理实践提供信息,并提高这些家庭的护理质量.
主要方法:
- 定性描述性设计. 定性描述性设计.
- 乔治的现象学方法.
- 10个半结构面试与技术依赖儿童的父母.
主要成果:
- 父母们正在经历一个"新的家长",包括家庭重组和学习医疗器械使用.
- 调和日常生活包括寻求支持系统和面对重大困难.
- 父母从诊断到持续的护理都会遇到各种各样的问题.
- 家庭动态经历了重大变化,需要牺牲和适应.
结论:
- 父母照顾技术依赖的孩子是一个艰苦的旅程.
- 包括家庭和医疗保健专业人员在内的支持系统至关重要.
- 可以加强护理,以更好地解决这些家庭的脆弱性.
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