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一个不确定的未来:患有炎症性肠病的新成年人的观点 - - 在中国东部进行的一项定性半结构面试研究
Yu Zhou1, Ranran Qiao2, Tengteng Ding2
1Department of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China.
BMJ open
|November 18, 2024
概括
患有炎症性肠道疾病的新兴成年人面临着教育,职业和社会生活的未来不确定性. 有效应对包括及时教育和一致的医疗指导,对传统中医有兴趣.
科学领域:
- 胃肠病学和肝病学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 新兴的成年期是一个关键的发展时期,以重要的生命过渡为标志.
- 在这个阶段,炎症性肠病 (IBD) 带来了独特的挑战,特别是在未来的不确定性方面.
- 有限的定性研究存在于IBD新兴成年人如何导航这些不确定性.
研究的目的:
- 调查IBD新兴成年人所经历的未来不确定性的性质.
- 探索这个人群使用的应对策略.
- 为制定有针对性的支持系统提供信息.
主要方法:
- 使用半结构面试进行的定性,现象学研究.
- 在中国东部的一家三级医院采访了14名被诊断患有IBD的新兴成年人.
- 数据分析遵循了Colaizzi的七步方法.
主要成果:
- 出现了四个关键的不确定性主题:教育/职业规划,社会/人际关系,心理/情感健康和疾病管理.
- 参与者强调了诊断后及时的患者教育和出院后一致的医疗指导的重要性.
- 还注意到人们希望通过传统中医药来治疗IBD.
结论:
- 患有IBD的新兴成年人经历了多方面的不确定性,影响了他们的发展.
- 医疗保健提供者应实施定制的支持和干预策略.
- 解决这些不确定性对于建立稳定的疾病管理和改善患者结果至关重要.
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