在预测性阿尔茨海默病诊断中咨询和披露实践:范围审查
Julia Perry1, Katrin Radenbach2,3, Katharina Geschke4
1Department of Medical Ethics and History of Medicine, University Medical Center Goettingen, Goettingen, Germany.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|November 19, 2024
概括
对阿尔茨海默病 (AD) 的生物标志物测试正在推进,但缺乏咨询和披露的临床指导. 本次审查强调,迫切需要为AD生物标志物测试中的测试前,披露和披露后阶段制定标准化指导方针.
科学领域:
- 神经学 神经学
- 遗传学 遗传学 是一个
- 医学伦理 医学伦理
背景情况:
- 对阿尔茨海默病 (AD) 基于生物标志物的预测技术越来越可靠和可访问.
- 目前关于AD生物标志物测试的咨询和披露的临床建议和指导尚未得到充分发展.
研究的目的:
- 对AD生物标志物测试的咨询和披露实践进行科学文献的范围审查.
- 确定现有的指导方针,并强调临床医生建议中的差距.
主要方法:
- 在PubMed,PsycINFO,LIVIVO和Web of Science进行了全面的文献搜索.
- 纳入标准集中在咨询,认知障碍或AD的生物标志物以及2005-2024年的出版物.
- 根据信息提供阶段确定和综合了63篇相关文章:测试前咨询,披露和披露后后续.
主要成果:
- 大多数出版物都涉及披露 (48),其次是测试前咨询 (33) 和披露后后续 (31).
- 17篇文章涵盖了咨询的各个阶段.
- 大多数出版物都指出了伦理挑战,但为临床医生提供了有限的实际建议.
结论:
- 迫切需要制定全面的,标准化的国家和国际指导方针,用于AD生物标志物测试中的咨询和披露.
- 对临床医生进一步制定实用,具体的建议对于有效的患者护理至关重要.
- 解决指导中的差距将改善AD生物标志物测试的伦理和实际实施.
关键词:
阿尔茨海默氏症的疾病是阿尔茨海默氏症.生物标志物 生物标志物咨询咨询 咨询 咨询 咨询痴呆症 痴呆症是一种痴呆症.公开披露的信息.这些指导方针是指导方针.建议建议建议建议建议建议危险的风险 危险的风险更多相关视频
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