揭开失踪的声音 - 父亲养育自闭症儿子的终身经验:一种解释性的现象学分析
Borbála Gabriella Koltai1,2, Eszter Pados3,4, József Rácz4,5
1Doctoral School of Education, ELTE Eötvös Loránd University, Budapest, Hungary.
Autism : the international journal of research and practice
|November 19, 2024
概括
这项研究探讨了父亲抚养自闭症儿子的终身经历,重点关注适应和个人成长. 这些发现为支持自闭症成年人的父亲提供了洞察力.
科学领域:
- 心理学 心理学 心理学
- 自闭症谱系障碍研究研究
- 家庭研究 家庭研究
背景情况:
- 有限的研究存在于自闭症成年人的父亲.
- 大多数自闭症研究都集中在母亲和幼儿身上.
- 了解父亲的一生经验对于全面支持至关重要.
研究的目的:
- 探索父亲抚养自闭症儿子的终身经验和解释.
- 解决父亲在自闭症研究中的代表性不足问题.
- 为了解自闭症成年后代的父亲面临的独特挑战和适应提供见解.
主要方法:
- 涉及10名匈牙利父亲的成年自闭症儿子的定性研究.
- 进行了半结构面试.
- 解释性现象学分析 (IPA) 用于分析数据.
主要成果:
- 四个主要主题出现了:"围绕失去和恢复控制的循环","跨越边界:接受和适应","作为一个父亲在世界上:永恒和有限的经验"和"通过透经验进行个人成长".
- 父亲们描述了持续的适应,接受和个人成长.
- 父亲们积极寻求服务和解决方案,为他们的儿子的现在和未来.
结论:
- 父亲养育自闭症儿子的经历是深刻而复杂的,涉及到持续的适应和成长.
- 研究结果强调了自闭症背景下父亲的独特方面.
- 对专业人士和服务提供商的影响包括为自闭症成年人的父亲开发有针对性的支持.
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