十名脊柱肌肉缩患者的感恩体验:一种定性研究
Shuang Dai1, Lan Gao1, Chao Zou1
1Department of Neurology, Jilin University First Hospital, Changchun, Jilin, 130061, People's Republic of China.
Psychology research and behavior management
|November 20, 2024
概括
脊柱肌缩 (SMA) 患者体验到感恩,这增强了他们的动力,社会支持感知和生活规划. 培养感恩可以提高心理性,有助于社会重新融入.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 康复医学 康复医学 康复医学
背景情况:
- 脊髓肌肉缩 (SMA) 是一种罕见的遗传疾病,影响运动神经元.
- 住院治疗对于患有慢性病症 (如SMA) 的患者来说,具有独特的挑战.
- 了解SMA患者的心理社会经验对于整体护理至关重要.
研究的目的:
- 探索SMA年轻和中年患者在住院期间的感恩体验.
- 为SMA患者开发以感恩为中心的干预提供理论基础.
- 提高SMA患者的生活质量和心理健康.
主要方法:
- 用nusinersen治疗的SMA患者的有目的抽样.
- 与参与者进行的半结构面试.
- 科拉伊兹的7步分析方法应用于采访数据.
主要成果:
- 发现感恩可以刺激SMA患者的积极情绪.
- 感恩增强了患者的动力和驱动力.
- 感恩反映了人们对社会支持的感知程度.
- 感恩促进了积极的生命重组和规划.
结论:
- 患有SMA的患者具有独特的感恩体验和生活感知.
- 加强感恩可以增强SMA患者的心理性.
- 感恩会影响人们对生活的看法,有助于规划日常生活和重新融入社会.
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