在印度背景下青春期和新兴成年期养育自闭症个体的经验:解释性的现象学分析
Harshini Manohar1, John Vijay Sagar Kommu1, M Thomas Kishore2
1Dept. of Child and Adolescent Psychiatry, National Institute of Mental Health and Neurosciences (NIMHANS), Bangalore, Karnataka, India.
Indian journal of psychological medicine
|November 20, 2024
概括
印度自闭症青少年的父母面临着独特的挑战,经历悲伤与接受和创伤后成长一起. 他们适应不断变化的需求,突出需要更好的未来护理规划和支持服务.
科学领域:
- 发展心理学 发展心理学
- 自闭症谱系障碍研究研究
- 护理人员支持研究研究
背景情况:
- 自闭症个体的需求在不同发育阶段发生变化,特别是在青春期.
- 自闭症儿童的照顾者面临着重大挑战,特别是在低收入和中等收入国家,只有有限的正式支持.
- 这项研究调查了父母在印度抚养自闭症青少年的实践经验.
研究的目的:
- 在印度背景下探索自闭症青少年父母的多方面的经验.
- 了解这些家庭面临的心理和实际挑战.
- 确定改善支持服务和干预的领域.
主要方法:
- 利用了12名自闭症青少年的家长的深入采访.
- 在数据分析中采用解释性的现象学方法.
- 专注于理解父母的主观生活经验.
主要成果:
- 确定了三个关键主题:与悲伤/损失的接受,创伤后的成长,以及未来的护理规划问题.
- 父母表现出适应和接受,承认青少年的成长与持续的挑战.
- 悲伤经历,虽然间歇性,与接受共存.
结论:
- 家庭适应发展变化,有或没有正式支持.
- 显著需要解决家长的需求,并赋予照顾者权力.
- 对自闭症患者及其家人来说,全面的,以寿命为导向的服务至关重要.
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