承认不确定性:围产医学息护理的综合框架
Dominic Wilkinson1,2,3,4,5, Sophie Bertaud2,6,7, Alexandra Mancini8
1Newborn Care, John Radcliffe Hospital, Oxford, UK dominic.wilkinson@uehiro.ox.ac.uk.
Archives of disease in childhood. Fetal and neonatal edition
|November 20, 2024
概括
这一框架指导了围产医学专业人员在为不确定的结果的婴儿整合息护理. 它强调整体的家庭支持和症状管理,改善对脆弱新生儿及其家人的护理.
科学领域:
- 围产儿医学 围产儿医学
- 抚慰性护理是一种缓解性护理.
- 新生儿服务 新生儿服务
背景情况:
- 越来越多的婴儿患有生命限制或危及生命的疾病.
- 与不确定的诊断或结果相结合的息护理的挑战.
- 对息治疗的整体,跨学科方法的好处得到了证实.
研究的目的:
- 为整合息护理在围产医学中提供一个框架.
- 为医疗保健专业人员提供产前和新生儿服务的指导.
- 解决不确定的预后婴儿的需求.
主要方法:
- 英国围产医学协会 (BAPM) 和儿科息医学协会 (APPM) 的合作开发.
- 关于识别可能受益于息治疗的婴儿的指导.
- 概述了关键要素:整体的家庭支持,赋予父母权力,并行规划,症状管理,损失和丧亲照顾.
主要成果:
- 承认息治疗对所有不确定结果的婴儿都是有价值的,而不仅仅是那些预计会过早死亡的婴儿.
- 建议采用统一的方法,涉及整个产周医疗团队和专业服务.
- 倡导将息治疗纳入日常实践.
结论:
- 呼吁转变产周护理理念,以接受息护理.
- 强调认识到和管理不确定的预测带来的挑战的重要性.
- 强调整体的家庭支持和症状管理,以改善结果.
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