将囊性纤维化患者登记册与国家医疗补助数据库联系起来的过程和有效性
Charles R Esther1, Melanie Rua2, Haoqian Chen2
1Division of Pediatric Pulmonology, Department of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, USA; Marsico Lung Institute/Cystic Fibrosis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
概括
将囊性纤维化基金会患者登记 (CFFPR) 数据与医疗补助申请联系起来,揭示了低收入CF患者的综合健康利用和成本. 这种联系为专门中心之外的护理模式和药物使用提供了宝贵的见解.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 生物医学信息学 生物医学信息学
- 公共卫生 公共卫生
背景情况:
- 囊性纤维化基金会患者登记 (CFFPR) 收集了有价值的数据,但缺乏关于在CF护理中心之外获得的医疗服务和药物的全面信息.
- 将CFFPR数据与国家医疗补助申请数据库联系起来,可以解决这些关键数据缺口.
研究的目的:
- 评估将CFFPR与国家医疗补助数据联系起来的可行性和价值,以更全面地了解低收入CF人口中医疗保健利用率和成本.
- 通过使用链接的注册表和索赔数据,探索CF患者的护理模式,药物使用和相关成本.
主要方法:
- 利用基于居住状态,性别和出生日期的链接算法,将CFFPR个人 (2015-2016) 与国家医疗补助数据库 (2016) 中的CF诊断代码相匹配.
- 拥有部分社会保障号码或居住在北卡罗来纳州的个人的雇佣子集,用于验证链接准确性和探索性分析.
主要成果:
- 在CFFPR的32,152名个人中,成功将10,616人与国家医疗补助数据库联系起来.
- 与单独CFFPR数据相比,北卡罗来纳州的相关个体表现出明显更高的门诊医疗服务供应商访问 (8.0与4.2) 和口服抗生素处方 (2.1与0.5).
- 在北卡罗来纳州队列中确定了实质性的药房成本 (16.4万美元),CFTR调节器,胰腺酶和多纳酶α作为主要支出,住院住院占非药房成本的53% (75万美元).
结论:
- 医疗补助和CFFPR之间的数据链接为低收入CF人口提供了有效的,全面的见解.
- 这种方法可以检查医疗保健的使用情况,药物坚持,比较有效性,安全性和经济影响.
关键词:
CFFPR 医疗补助决定性联系
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