整合以患者为中心和以瘤为中心的癌症护理:欧盟-MyPath实施项目提供了一个创新的数字解决方案,包括护理途径
Anne-Lore Scherrens1, An Jacobs2, Kim Beernaert3
1End-of-life Care Research Group, Vrije Universiteit Brussel and Ghent University, Laarbeeklaan 103 Jette 1090, Belgium.
Palliative care and social practice
|November 21, 2024
概括
以患者为中心的护理 (PCC) 和数字工具,如患者报告的结果措施 (PROMs),对于改善癌症存活率至关重要. MyPath项目旨在将其整合到欧洲癌症中心,以提高患者的生活质量.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 数字健康数字健康
背景情况:
- 癌症幸存者面临重大挑战,包括症状负担和情绪困扰,需要改善以患者为中心的护理 (PCC).
- 目前的癌症护理往往优先考虑以瘤为中心的方法,忽视了患者的观点,并阻碍了基于证据的PCC指南的常规实施.
- 患者报告结果措施 (PROM) 和以患者为中心的护理途径 (PCCP) 对于提高生活质量至关重要,但在日常实践中未得到充分利用.
研究的目的:
- 解决PCC已确定的好处与在癌症护理中的常规实施之间的差距.
- 描述PCC在常规癌症护理环境中的应用现状.
- 为欧洲MyPath项目实施数字PCCP与PROM在不同欧洲癌症中心的战略提供前性视角.
主要方法:
- 进行了文献搜索,以确定以患者为中心的护理和瘤学中的PROMs的最新情况.
- 在2020年"地平线"资助的欧洲MyPath项目中,正在开发,实施和评估与PROM集成的数字PCCP.
- 将采用实施科学策略,将MyPath干预量身定制为欧洲癌症中心内的各种组织背景.
主要成果:
- 目前PCC在常规癌症护理中的现状揭示了以患者为中心和PROM集成的重大差距.
- MyPath项目提供了一个结构化的方法,通过开发和评估数字解决方案来弥合这些差距.
- 该项目强调定制实施策略,以加强在不同欧洲医疗保健系统的采用.
结论:
- 数字PROM和PCCP的系统整合对于改善癌症幸存率和生活质量至关重要.
- "MyPath"项目提供了一个框架,以克服在欧洲实施以患者为中心的癌症护理的障碍.
- 成功采用需要量身定制的实施科学策略,以适应不同的国家和机构背景.
相关概念视频
01:13Patient-centered Care
2.0K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.0K
01:27Nursing Clinical Information System
754
Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
754
01:15Methods of Documentation VI: Case Management Model
559
The case management model is a multidisciplinary approach that involves healthcare professionals from diverse disciplines, such as physicians, nurses, therapists, social workers, and pharmacists, working collaboratively to address the various needs of patients. Each healthcare professional brings unique expertise and perspectives, contributing to a more comprehensive understanding of the patient's condition and tailoring treatment plans accordingly.
For example, a patient with a chronic...
For example, a patient with a chronic...
559
02:50Combination Therapies and Personalized Medicine
4.9K
Combining two or more treatment methods increases the life span of cancer patients while reducing damage to vital organs or tissue from the overuse of a single treatment. Combination therapy also targets different cancer-inducing pathways, thus reducing the chances of developing resistance to treatment.
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
4.9K
01:21Cancer Survival Analysis
328
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
328