荷兰儿科息护理指南:关于事先护理规划和共享决策的系统审查和建议
Kim C van Teunenbroek1, Renée L Mulder2, Dayna A M van Heel2
1Princess Máxima Centre for Paediatric Oncology, Utrecht, the Netherlands. k.c.vanteunenbroek@prinsesmaximacentrum.nl.
BMC palliative care
|November 23, 2024
概括
提前护理规划和共享决策提高了儿科息护理的质量. 建议指导儿童和家庭参与照顾决策,强调教育和实施资源.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 儿科瘤学 儿科瘤学
- 生物伦理学生物伦理学
背景情况:
- 患有生命限制疾病的儿童及其家人面临复杂的护理决策.
- 预先护理规划 (ACP) 和共享决策 (SDM) 通过将治疗与患者和家庭偏好保持一致来提高护理质量.
- 优化ACP和SDM在儿科息护理中至关重要.
研究的目的:
- 制定基于证据的建议,以优化儿科息护理的预先护理规划和共享决策.
- 为荷兰的医疗保健专业人员提供指导.
主要方法:
- 一个由20名专家和9名家长组成的多学科小组制定了建议.
- 系统的文献搜索确定了定量和定性证据.
- 用GRADE (CERQual) 方法来评估证据,整合证据,专业知识和患者经验.
主要成果:
- 四个RCT和33个定性研究为推提供了基础.
- 制定了28个强有力的建议.
- 指导包括提供ACP/SDM,让儿童和家庭参与,并传达护理信息.
结论:
- 有证据支持儿童息护理中的ACP和SDM.
- 存在知识差距,实施需要教育,人员和资金.
- 建议可以在国际上进行调整,考虑到国家特定的因素.
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