"你不知道你不知道什么":父母对导航残疾相关信息和资源的观点
Emily R Lanchak1, Erik W Carter1, Elise D McMillan1
1Emily R. Lanchak, Vanderbilt University; Erik W. Carter, Baylor University; and Elise D. McMillan, Vanderbilt University Medical Center.
Intellectual and developmental disabilities
|November 24, 2024
概括
残疾儿童的父母为他们的孩子寻求形成性的经验,但面临着进入当地资源的障碍. 信息搜索通常涉及专业人员和技术,突出需要改进资源导航.
科学领域:
- 儿童发展 儿童发展
- 关于残疾人的研究.
- 育儿研究研究 育儿研究
背景情况:
- 残疾儿童的家长优先考虑多样化的形成经验.
- 熟悉支持这些经验的当地资源往往是有限的.
- 障碍阻碍了父母获得关键信息和支持的机会.
研究的目的:
- 检查父母对残疾儿童的优先事项.
- 识别家长用来获取信息和资源的途径.
- 了解父母在资源导航中所面临的挑战.
主要方法:
- 对405名12岁及以下有各种残疾儿童的家长进行了调查.
- 分析家长的优先事项和资源意识.
- 对获取信息和支持的障碍进行定性探索.
主要成果:
- 父母非常重视孩子的一系列形成性经验.
- 家长对当地资源的认识是不均的,而且经常很低.
- 显著的障碍使父母无法获得所需的信息和帮助.
结论:
- 尽管父母的愿望很高,但资源的可访问性仍然是一个挑战.
- 父母利用专业和技术来源的结合来获取信息.
- 需要进行干预,以改善家长与残疾人资源的联系.
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