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在英格兰和苏格兰的吉普赛社区的炎症性肠病
Affifa Farrukh1, John F Mayberry1
1Nuffield Hospital, Leicester LE5 5HY, United Kingdom.
在英格兰和苏格兰的旅行社区中,关于因炎症性肠病 (IBD) 入院的数据收集不足. 苏格兰提供了比英格兰更好的数据,强调了医疗保健中需要改进种族编码的需要.
科学领域:
- 胃肠病学和公共卫生研究研究
- 医疗保健数据分析数据分析
- 种族健康差异的差异
背景情况:
- 在英格兰和苏格兰,旅行者群体的数量在15万到50万之间.
- 苏格兰医院数据包括吉普赛人,罗姆人,爱尔兰旅行者和表演人员的种族代码.
- 英语NHS信托很少详细介绍种族代码,除了"其他英国人".
研究的目的:
- 评估旅行社区中炎症性肠病 (IBD) 住院数据的可用性.
- 将英格兰的NHS信托机构和苏格兰的NHS委员会之间的数据收集实践进行比较.
- 在这个人群中研究IBD手术程序 (性结肠炎的泛肠切除术,克罗恩病的血肠切除术).
主要方法:
- 信息自由要求发送给了英格兰的132个NHS信托机构和苏格兰的14个NHS董事会.
- 要求的数据涵盖了2016年至2022年期间因性结肠炎和克罗恩病入院的病例.
- 还研究了特定的外科手术手术 (泛肠切除术,半肠切除术).
主要成果:
- 在132个英格兰NHS信托机构中,只有7家能够为旅行社区提供IBD入院数据.
- 相比之下,14个苏格兰NHS董事会中有13个成功提供了这些数据.
- 数据显示,1012例性结肠炎 (估计138例患者) 和901例克罗恩病 (至少9例血液切除术) 的入院.
结论:
- 英格兰和苏格兰医疗保健提供者收集特定种族IBD数据的能力存在显著差异.
- 这些发现强调了英国NHS中旅行社区数据收集的严重不足.
- 改进的种族编码和数据报告对于理解和解决这一群体的健康需求至关重要.
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