减少欺诈参与和突出自闭症声音在研究中的方法
Meghan E Carey1,2, Kiley J McLean1, Kyle Chvasta1
1Drexel University, USA.
Autism : the international journal of research and practice
|November 25, 2024
概括
保护自闭症研究免受在线诈骗者的侵害至关重要. 实施和测试新的策略有助于确保自闭症参与者的数据完整性和包容性.
科学领域:
- 自闭症研究 自闭症研究
- 在线定性研究在线定性研究
- 参与者欺诈 参与者欺诈
背景情况:
- 在线研究为自闭症患者提供了更多的可访问性.
- 在线研究的兴起导致欺诈性参与者代表的增加.
- 现有的反骗子策略可能会无意中排除具有非典型沟通风格的自闭症患者.
研究的目的:
- 评估在线自闭症研究中现有的反骗子策略的有效性.
- 测试新的策略,以减轻欺诈性参与.
- 讨论自闭症研究参与者查的伦理考虑.
主要方法:
- 实施了基于文献的参与者查策略.
- 测试了额外的新兴策略来识别和排除诈骗者.
- 收到200多份兴趣表达,其中大量基于查被排除在外.
主要成果:
- 既定和新兴的策略对于减轻骗子招募至关重要.
- 超过100名潜在参与者被确定为骗子,并被排除在外.
- 实施的策略在提高数据完整性方面被证明是有效的.
结论:
- 严格的查对于可靠的自闭症研究至关重要,但会带来排除某些自闭症个体的风险.
- 推程序需要时间和资源,但对于数据完整性和包容性至关重要.
- 与公平的参与者选择平衡欺诈预防是一个关键的道德挑战.
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