在日本选择性沉默症中的家长问题和支持需求:定量内容分析
Tomohisa Yamanaka1,2, Honami Koyama1,3, Masahiko Inoue4
1Department of Doctoral Course, Graduate School of Medical Sciences, Tottori University, Yonago 683-8503, Japan.
Yonago acta medica
|November 25, 2024
概括
选择性沉默症 (SM) 的孩子的父母面临着延迟诊断和缺乏支持等挑战. 他们需要更多的信息,理解和具体的策略来帮助他们的孩子克服MS.
科学领域:
- 儿童心理学 儿童心理学
- 焦虑症 焦虑症 焦虑症
- 父母支持系统的父母支持系统
背景情况:
- 选择性沉默 (SM) 是一种焦虑障碍,影响儿童在社交环境中的言语.
- 患有MS的孩子的父母往往会遇到严重的应对困难.
- 了解父母面临的挑战对于开发有效的支持至关重要.
研究的目的:
- 分析选择性沉默症儿童的父母所面临的具体问题.
- 确定照顾MS儿童的家长的支持需求.
- 检查父母的问题和需求如何随着诊断和并发症状况而变化.
主要方法:
- 对70名患有MS儿童父母的回答进行了定量内容分析.
- 利用开放式问题收集有关家长挑战和支持需求的数据.
- 通过SM信息交换小组和社交网络服务招募的参与者.
主要成果:
- 父母的问题包括诊断延迟,不上学,教师支持不足,对他人缺乏同情心,以及导致孤立的沟通障碍.
- 父母的支持需要包括可访问的咨询,支持者的更多理解,关于SM的增强知识,以及具体的改进方法.
- 伴随性疾病的影响较小,但诊断的存在影响了父母的问题和支持需求.
结论:
- 患有MS的孩子的父母受到专业知识差距和症状严重程度的重大影响.
- 对于管理SM的家长来说,有强烈需要增加理解和资源.
- 对家长的支持系统需要对需求进行全球识别,并建立全面的框架.
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