当我们使用智力和发育障碍时,我们在谈论谁?
Marc J Tassé1, Susan M Havercamp1, Gloria Krahn2
1The Ohio State University, Columbus.
JAMA pediatrics
|November 25, 2024
概括
知识障碍 (ID) 和发育障碍 (DD) 的术语不一致导致研究和政策的混乱. 清晰的定义和一致使用IDD等缩写对于准确的沟通和理解至关重要.
科学领域:
- 关于残疾人的研究.
- 公共卫生传播 公共卫生传播
- 卫生政策 卫生政策
背景情况:
- 关于人口群体的清晰沟通对于知识转移至关重要.
- 对智力障碍 (ID) 和发育障碍 (DD) 的不一致的定义和缩写造成了显著的模两可.
- 术语的变化会影响研究,临床发现和政策决策的解释.
研究的目的:
- 突出智力障碍 (ID) 和发育障碍 (DD) 患者沟通中的不一致性.
- 解决ID和DD领域使用的定义和缩写的广泛变化.
- 为提高一致性和清晰性提出建议.
主要方法:
- 这篇叙述性综述分析了用于智力障碍和发育障碍的术语的当前状态.
- 该审查审查了不一致的定义和缩写对流行率和数据解释的影响.
- 根据确定的问题制定建议.
主要成果:
- 对于智力和发育障碍的定义和缩写 (例如,ID/DD,IDD,I/DD) 存在显著的变化.
- 这种不一致导致发育障碍报告流行率的5倍差异.
- 含糊不清的初始词的使用模糊了它们是否指的是单独的或同时发生的条件.
结论:
- 清晰的操作定义和一致的缩写使用对于准确的沟通至关重要.
- 作者应在学术作品,临床出版物和政策文件中首次使用时定义所选的首字母.
- 加强一致性将改善所有利益相关者的理解,包括研究人员,从业者和政策制定者.
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