以家庭为中心的产前护理与限制生命的胎儿条件:一个发展理论引导的方法
Carrie J Henry1, Denise Côté-Arsenault2
1Capstone College of Nursing, The University of Alabama, Tuscaloosa, Alabama.
Journal of midwifery & women's health
|November 26, 2024
概括
本研究概述了父母在怀孕期间导航Trisomy 18 (T18) 诊断的心理社会阶段和发展任务. 有知识的医疗保健提供者使父母能够做出明智的选择,确保在这个充满挑战的旅程中没有后悔.
科学领域:
- 周围生理学 周围生理学
- 心理社会健康 心理健康
- 遗传学 遗传学 是一个
背景情况:
- 三胞胎症18 (T18) 是一种常见的自体三胞胎症,与严重的健康问题和缩短寿命有关.
- 怀孕与限制生命的胎儿状况,如T18呈现独特的心理社会挑战.
- 之前的工作描述了怀孕的心理社会阶段,但需要适应限制生命的条件.
研究的目的:
- 描述受Trisomy 18影响的怀孕的扩展心理社会阶段和发育任务.
- 突出医疗保健提供者在这些阶段支持父母的关键作用.
- 授权父母在T18怀孕期间做出价值一致的选择.
主要方法:
- 病例报告详细介绍了患有"三胞胎 18"的怀孕情况.
- 扩展现有的心理社会怀孕阶段模型 (基于Rubin的Côté-Arsenault和Denney-Koelsch).
- 识别和描述家长7个关键的发展任务.
主要成果:
- 确定了5个心理社会阶段:诊断前,学习诊断,与诊断生活,出生和死亡以及死亡后.
- 概述了7个发展任务:导航关系,理解影响,修订目标,充分利用时间,准备出生/死亡,倡导婴儿,适应缺席.
- 强调了知识博的提供者在促进家长决策方面的影响.
结论:
- 对心理社会阶段和任务的结构化方法可以支持面临T18的父母.
- 医疗保健提供者对于赋予父母权力,让他们能够进行复杂的决策,并尽量减少后悔,至关重要.
- 了解这些阶段和任务可以改善对经历生命限制胎儿诊断的家庭的护理.
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