家庭护理人员对儿科囊性纤维化信息的需求:一项定性研究

Samara Macedo Cordeiro1, Helen Bras da Silva2, Fernanda Machado Silva-Rodrigues3

  • 1Faculty of Nursing, State University of Campinas (Unicamp), Campinas - SP, Brazil.

概括

患有囊性纤维化 (CF) 儿童的家庭照顾者需要全面的信息和情感支持. 整合患者和以家庭为中心的护理 (PFCC) 对于有效的CF管理至关重要.

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