儿科环境中的终身护理:英国国家调查
Andre Bedendo1, Andrew Papworth1, Bryony Beresford2
1Department of Health Sciences, University of York, Heslington,York, UK.
BMJ supportive & palliative care
|November 28, 2024
概括
孩子 孩子 孩子 孩子
科学领域:
- 儿科缓和护理 儿科缓和护理
- 终身护理研究 终身护理研究
- 医疗保健服务研究 医疗保健服务研究
背景情况:
- 在英国,大多数儿童死于新生儿病房 (NNU),儿科重症监护室 (PICU) 或儿童癌症主要治疗中心 (PTC).
- 了解这些环境中的终身护理差异对于改善结果至关重要.
- 现有研究强调需要检查儿童终身护理的不同模式.
研究的目的:
- 描述英国NNU,PICU和PTC的终身护理实践.
- 在这些不同的环境中识别护理的共同点和差异.
- 探索儿童生命末期护理是否存在不同的模式.
主要方法:
- 在英国的NNU,PICU和PTC进行了在线调查.
- 收集的数据集中在服务组织,交付和与儿童,父母和丧亲终身护理相关的做法上.
- 该调查评估了生命终点护理的核心要素,涉及三个领域.
主要成果:
- 实现了37%的响应率 (91个单位/中心).
- 在提供关键终身护理要素方面,在设置内部和设置之间观察到显著的差异.
- 主要治疗中心 (PTC) 与NNU和PICU相比,更强烈地整合了息护理专业知识和多学科团队代表性,尽管哀悼护理的发展较低.
结论:
- 儿童和家庭在终身护理中遇到各种变化,这些变化会对他们的经历和结果产生重大影响.
- 这些护理差异部分归因于特定的医疗保健环境.
- 进一步的研究 (ENHANCE研究) 将调查核心终身护理要素对儿童和父母结果的影响.
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