家庭成员在加拿大PICU限制家庭存在的经验:一个解释性描述性研究
Jennifer R Foster1,2,3, Molly J Ryan4,5, Daniel Garros6,7
1Department of Critical Care, Dalhousie University, Halifax, NS, Canada. jennifer.foster@dal.ca.
在COVID-19期间,限制家庭在儿科重症监护室 (PICU) 的存在,为父母创造了重大障碍,影响了他们履行角色的能力,并增加了孤立. 富有同情心的医疗保健方法对于在重症期间支持家庭至关重要.
科学领域:
- 儿科重症监护 儿科重症监护
- 家庭为中心的护理.
- 医疗保健伦理学 医疗保健伦理
背景情况:
- 家长在儿科重症监护室 (PICU) 的存在与改善患者和家庭的结果有关.
- 国际上对家庭存在的限制,由COVID-19加剧,导致父母的隔离,焦虑和压力.
研究的目的:
- 在COVID-19大流行期间,探索家庭成员在加拿大PICU中的受限家庭存在 (RFP) 政策的经验.
- 为未来关于家庭在PICU中的存在的伦理和基于证据的决策提供信息.
主要方法:
- 定性解释性描述性研究.
- 涉及故意采样的加拿大PICU患者的家庭成员,这些患者经历了RFP政策.
- 开放式采访的诱导性专题分析.
主要成果:
- 14位家长人物提出了四个主题:履行家长角色的挑战,与支持系统的隔离,增加的后勤困难,以及对同情护理的需求.
- 对于患有重症儿童的家庭来说,RFP政策造成了重大障碍.
结论:
- 对于患有重症儿童的家庭来说,RFP政策带来了巨大的挑战.
- 医疗保健组织应实施一致的,有同情心的政策应用,认识到父母在PICU中的双重角色.
- 调查结果对以家庭为中心的护理的流行病后政策和实践有影响.
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