释放成功:社区参与改善艾滋病毒护理成果
Sarah E Wiehe1,2, Tammie L Nelson3, Bridget Hawryluk4
1Division of Children's Health Services Research, Department of Pediatrics, Indiana University School of Medicine, 410 W. 10th Street, HS2000, Indianapolis, IN, 46202, USA. swiehe@iu.edu.
Research involvement and engagement
|November 29, 2024
概括
社区参与和以人为中心的设计通过参与艾滋病毒感染者和社会服务提供者来改善艾滋病毒研究. 这种方法确保干预措施是相关的,并建立对有影响力的,可持续的公共卫生倡议的信任.
科学领域:
- 公共卫生 公共卫生
- 健康 公平 卫生 公平
- 健康的社会决定因素
背景情况:
- 社会决定因素显著影响健康结果,但关于艾滋病毒护理的研究往往忽略了非临床因素,如住宅流动性和社会服务获取.
- 了解这些因素对于改善艾滋病毒治疗连续性至关重要,特别是对于与医疗保健联系分散的个人.
- 这项研究通过整合临床和非临床数据,以社区投入为指导,来弥补这一差距.
研究的目的:
- 调查住宅流动性和社会服务参与如何影响艾滋病毒治疗连续性.
- 为艾滋病毒感染者制定社区知情,基于研究的干预措施.
- 分享一个有效的社区参与模式,用于公共卫生研究.
主要方法:
- 采用以人为中心的设计 (HCD) 原则,与印第安纳州CTSI的研究团队合作.
- 招募了多元化的顾问小组,包括艾滋病毒感染者,临床医生和社会服务机构代表.
- 使用HCD工具进行了六次参与会议,以告知研究设计和干预开发.
主要成果:
- 聘请了48名顾问,其中35人积极参与研究活动.
- 顾问积极指导数据分析,确定数据缺口,解释发现,并提供对干预措施的反.
- 顾问在健康公平会议上共同介绍了研究结果,证明了有意义的合作.
结论:
- 社区参与,特别是使用HCD,通过培养信任,同情和协作,为艾滋病毒研究增加了显著的价值.
- HCD增强了顾问的保留能力,并使社区成员成为研究中的平等合作伙伴.
- 这种以人为中心的方法对于创造相关,有影响力和可持续的公共卫生研究和干预至关重要.
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