基于网络的多发性硬化症生活方式计划后的疾病控制,连贯性和自我效能的感知:半结构面试的定性分析
Rebekah Davenport1, William Bevens2,3, Sandra Neate3
1Melbourne School of Psychological Sciences, Faculty of Medicine, Dentistry & Health Sciences, The University of Melbourne, Melbourne, Australia.
Journal of medical Internet research
|November 29, 2024
概括
在线课程中的生活方式修改改善了多发性硬化症 (MS) 患者的疾病感知,提高了自我效能和个人控制. 这种干预提供了一种新的方法来管理MS通过积极影响患者的态度和健康结果.
科学领域:
- 健康心理学 心理健康心理学
- 慢性疾病管理 慢性疾病管理
- 定性研究方法 定性研究方法
背景情况:
- 疾病的感知显著影响多发性硬化症 (MS) 患者的情感困扰和身体健康.
- 现有的关于MS疾病感知的研究主要使用定量方法.
- 改变生活方式为积极影响疾病观念提供了潜在的途径.
研究的目的:
- 探索在线MS课程的随机对照试验参与者的体验和健康结果.
- 调查课程完成后对MS和健康 (疾病感知) 的态度的感知变化.
- 评估生活方式改变对MS患者疾病感知的影响.
主要方法:
- 从38名参与者 (22项干预,16项标准护理) 通过半结构面试收集了定性数据.
- 面试是在MS在线课程完成一个月后进行的.
- 使用感应主题分析来探索课程参与和生活方式改变对疾病感知的影响.
主要成果:
- 在干预课程 (IC) 组中,疾病感知的变化最为明显.
- 从定性反应中出现了三个关键主题:"疾病管理的自我有效性"",个人控制"和"疾病连贯性".
- 这些主题主要由IC军的22名参与者提供信息.
结论:
- 这项研究为MS患者的疾病感知形成和改变提供了新的见解.
- 整合到在线课程中的生活方式修改可以增强个人控制,疾病连贯性和自我效能.
- 这种方法可以作为一种有价值的补充,用于MS管理的传统临床医生管理的疗法.
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