青少年门户访问政策对家长和青少年的可接受性:德尔菲研究
Bryan A Sisk1, Alison L Antes2, Christine Bereitschaft3
1Division of Hematology/Oncology, Department of Pediatrics, Washington University School of Medicine, St. Louis, Missouri; Department of Medicine, Bioethics Research Center, Washington University School of Medicine, St. Louis, Missouri.
概括
青少年和家长支持对患者门户的透明访问,但反对收取消息费用. 关于细分访问和消息可见性的政策需要进一步达成共识,突出改善医疗保健系统的领域.
科学领域:
- 青少年医学 青少年医学
- 医疗信息学 医疗信息学
- 患者参与 患者参与
背景情况:
- 医疗保健系统有不同的青少年患者门户政策.
- 青少年和家长对这些政策的看法并不成熟.
研究的目的:
- 确定各种在线患者门户政策的青少年和家长的接受度.
- 为医疗保健系统提供有关青少年门户使用政策制定的信息.
主要方法:
- 在36名参与者 (18名青少年,18名家长) 中使用了混合方法的Delphi方法.
- 评估了有关门户访问,结果发布时间和消息传递的19项政策.
- 参与者对政策的支持,接受或反对进行了投票.
主要成果:
- 专家小组成员支持青少年和家长透明地获取敏感和非敏感信息.
- 在青少年控制家长访问特定医疗记录部分方面没有达成共识.
- 支持立即发布结果和免费消息;反对收费消息.
结论:
- 一些医疗保健系统当前的青少年患者门户政策受到用户的反对.
- 医疗保健领导者在修改门户政策时应考虑青少年和家长的反.
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