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父母在了解和照顾口唇裂儿童方面的经验:来自南印度的定性研究
Shuba Kumar1, Rani Mohanraj1, Thailavathy Vaidhyalingam2
1Samarth, Chennai, Tamil Nadu, India.
父母在得知孩子患有唇裂 (CLP) 时感到震惊和困惑. 加强家长的理解和情感支持对于有效的CLP护理和改善结果至关重要.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 头骨面部异常情况
- 父母支持系统的父母支持系统.
背景情况:
- 唇裂 (CLP) 给家庭带来了独特的挑战.
- 了解父母的经历对于改善照顾提供至关重要.
研究的目的:
- 为了探索父母对CLP诊断的反应.
- 确定家长在照顾CLP儿童时所面临的挑战.
- 为医疗保健专业人员提供见解,以提高护理质量.
主要方法:
- 使用接地理论进行定性深度访谈.
- 在印度南部的奈,采访了11名患有CLP儿童的父母.
- 专注于理解父母的观点和经验.
主要成果:
- 父母报告说,在诊断时感到震惊和困惑.
- 关键的挑战包括认识不足,营养困难和对未来的担忧.
- 家庭支持和同龄人互动显著帮助了应对.
结论:
- 父母需要更好的理解和情感支持,以获得有效的CLP护理.
- 需要标准化的信息材料来提供一致,可靠的指导.
- 赋予父母权力对于儿童福祉至关重要.
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