在自闭症护理中编排节奏:在时间内和时间内实施父母的专业知识
1Department of Sociology, University of Haifa, Haifa, Israel.
概括
用补充和替代医学 (CAM) 照顾自闭症儿童的父母随着时间的推移发展了专业知识. 他们的时间策略有助于管理疗法,并使儿童保持一致.
科学领域:
- 健康和疾病的社会学.
- 自闭症谱系障碍研究研究
- 定性研究方法 定性研究方法
背景情况:
- 自闭症儿童的父母往往需要在复杂的护理系统中进行导航.
- 补充和替代医学 (CAM) 经常被寻求自闭症治疗的家庭使用.
- 时间和时间经验在非专业知识的发展中的作用被低估了.
研究的目的:
- 探索父母管理自闭症护理的专业知识和暂时性之间的关系.
- 了解父母如何通过与时间的接触来构建和实施专业知识.
- 调查父母在为自闭症儿童使用CAM时采用的时间策略.
主要方法:
- 半结构面试的分析与父母治疗自闭症儿童的CAM.
- 定性主题分析,重点关注家长的时间和专业知识经验.
- 检查时间因素如何影响父母的决策和照顾实践.
主要成果:
- 随着时间的推移,由于系统的不确定性和紧迫性,家长会培养专业知识.
- 父母从事复杂的"时间工作",以管理多种生活节奏 (日常,发育,治疗,社会).
- 父母使用CAM疗法来与同龄人同步孩子的发展,认为传统医学是缓慢的.
结论:
- 暂时性是构建和实施家长在自闭症护理方面的专业知识的关键维度.
- 父母的时间策略和"时间工作"对于管理CAM疗法和断言专业知识至关重要.
- 这项研究突出了世俗专业知识,时间性和自闭症护理的交集,提供了超越传统医疗框架的新视角.
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