在结直肠癌患者及其护理人员中对症状管理进行基于技术的双向干预的看法和需求:一项定性研究
Amruta Epari1, Kevin Kim, Canhua Xiao
1Author Affiliations: Emory College of Arts and Sciences (Ms Epari and Mr Kim), Nell Hodgson Woodruff School of Nursing (Dr Xiao, Mr Liu, and Dr Lin), and Winship Cancer Institute (Drs Xiao, Alese, Graetz, and Lin), Emory University, Atlanta, Georgia; Department of Psychiatry and Behavioral Sciences, School of Medicine, Duke University, Durham, North Carolina (Dr Porter); and School of Medicine, Emory University, Atlanta, Georgia (Dr Alese); School of Nursing, University of Michigan, Ann Arbor (Dr Northouse); and Department of Health Policy and Management, Rollins School of Public Health, Emory University, Atlanta, Georgia (Dr Graetz).
结肠直肠癌 (CRC) 患者和护理人员需要技术来管理共同的症状. 一个定制的数字工具应该提供个性化的内容,易于使用和社会支持,以改善护理和获取.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者护理 患者护理
背景情况:
- 结肠直肠癌 (CRC) 患者和护理人员面临着严重的症状负担,包括疲劳,抑郁,焦虑和睡眠问题.
- 对于患者-护理人员对象的这些同时出现的症状的管理,存在一个研究缺口,特别是使用基于技术的干预措施.
研究的目的:
- 探索CRC患者-护理人员对一种基于技术的工具来管理多种症状的需求和看法.
- 收集关于开发有效的数字健康解决方案的见解,用于CRC症状管理.
主要方法:
- 使用有目的抽样进行的定性描述性研究.
- 与接受化疗的CRC患者及其非正式护理人员进行的半结构面试.
- 主题分析用于从采访数据中识别新出现的主题.
主要成果:
- 高症状负担是CRC患者及其照顾者的共同体验.
- 患者和护理人员利用自我管理策略,如信息搜索,社会支持和应对机制.
- 对技术的关键考虑包括个性化内容,直观设计和社交支持功能,以及对数字素养和访问的担忧.
结论:
- 慢性肺炎患者-护理人员对象需要定制的技术解决方案来治疗症状.
- 未来的干预措施应侧重于个性化,基于证据的内容,用户友好的界面和综合的社会支持.
- 开发这些工具可以解决心理社会需求,改善癌症护理中的健康公平.
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