网络阿尔茨海默症社区的非正式护理人员之间的情感动态:情感支持和交互模式的系统分析
Congning Ni1, Qingyuan Song1, Qingxia Chen2,3
1Department of Computer Science, Vanderbilt University, Nashville, TN, United States.
JMIR aging
|December 4, 2024
概括
对于阿尔茨海默病和相关痴呆症 (ADRD) 的非正式照顾者,通过在线同行支持,他们的心理健康得到了改善. 参与基于网络的社区讨论照顾者的挑战会随着时间的推移增加积极的情绪.
科学领域:
- 老年学是一门学科.
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 阿尔茨海默病和相关痴呆症 (ADRD) 对非正式照顾者造成了重大负担.
- 基于网络的社交媒体为护理人员提供了有价值的同行支持,但其对心理健康的影响还未得到充分研究.
研究的目的:
- 为了检查非正式的ADRD护理人员之间的情感得分动态.
- 了解参与在线ADRD照顾社区如何影响照顾者的心理健康.
主要方法:
- 来自两个大型基于网络的ADRD护理社区 (ALZConnected和TalkingPoint) 的帖子分析.
- 使用情感推理和语言调查和词数的Valence Aware词典计算情感得分.
- 结构化主题建模和回归分析的应用,以确定影响情绪的主题和纵向情绪趋势.
主要成果:
- 话题发起者在随后的讨论中表现出更多的积极情绪.
- 这些社区的护理人员的积极情绪通常随着时间的推移而上升.
- 关于家庭和日常生活的讨论与较高的情绪相关,而与疾病和设施相关的主题与较低的情绪相关.
结论:
- 基于网络的社区在非正式的ADRD护理人员中促进了积极的情绪变化.
- 在网上讨论中,早期的情感支持至关重要.
- 在线同行支持显示了提高照顾者的情感福祉的潜力.
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